nuff said

Realizing that I'm autistic has been traumatizing. It's just a word, in terms of its capacity to communicate information. It represents different things to different people. 

In specific terms of where I am on the spectrum, it represents all sorts of things I thought were hurdles that I inexplicably couldn't get over. In my head, I'd overcome eventually. One day I'd be a functional grown up, who could hold a job, afford a place to live and a car. I'd have a social life and a girlfriend.

I hate when people doubt why these things matter. It makes me defensive. How absurd to be miserable about things that don't actually matter, but these are just the basic underpinnings of good mental health in modern society. It is not delusion to understand the need for material security and independence, emotional bonds and experiences with other human beings we enjoy being around. 

It is not delusion to understand how and why our capacities for these things matter to other people. Nor is it delusion to see how other people's opinions of us can have substantial consequences. 

Being autistic is more like cerebral palsy or downs syndrome than depression or anxiety. Less overt or outwardly obvious, but we are not seen as peers, especially if we don't work or drive. Even more so if we don't do much of anything because shifting gears is so hard and we can't focus on anything outside the scope of whatever it is we're focused on. 

I'm not bad at social interaction because I have anxiety. I have anxiety because I am fundamentally and inherently bad at social interaction. In those times when I seem to be doing ok at it, just understand that it's taking a lot of effort. I've gotten better at it over the years, but it rarely comes naturally. 

To a greater extent than I'd realized, this is just the way I am. Autism is not a mental illness. It is not something people are afflicted with, overcome or even get treated. You can treat symptoms like depression and anxiety, as with anyone else, but you don't really treat autism, let alone cure it. 

It explains a whole lot about my life, while making me realize, I am never going to be a normal society navigating functional adult. I've made some progress, I've grown, I've learned tactics to manage, but I'm no less autistic and never will be.

This was the crisis I was going through, before having my life taken from me. When I needed support and stability to navigate this in a positive way, I was cast out like trash, my whole life upended. I'm grateful for the support I received in Philly. The problem was that it was in Philly.

I completely fell apart in Philly. I didn't know what I was going to do or where I'd be able to live. I am doing better now, but I am seriously damaged. My entire trajectory nosedived, and even as I recover some of it, it can't ever be what it was. I can't be who I was. I can't go where he was going. I'm doing what I can. I have ambitions again, my life has some direction, even if not what it was before.

Stumbling through roadblock after roadblock, and well, I'm 50 now. My trajectory is what it was. I'm pretty much done.

attachments

The monotropic mind tends to dig deep grooves fixating on what it can. We don't handle change or adapt well, because we become so attached to the way things are, or if we get too lost in our own heads, the way things should be. It isn't just difficult in some nebulous sense of sweating and struggling, but wounding and extraordinarily painful, losing everything I've been fighting to get used to.

Some in the autistic community will say that we are not disabled, just different, trying to function in a world designed by and for neurotypicals. I think what they're missing is that neurotypicals are all kinds of different from one another but they're also much better at adapting to whatever life demands. The inability to adapt is the problem. It's not a matter of being different. It's disabling.

As I struggle to get from one day to the next, I cling to what I can. I become attached. Then life goes and rips it all apart, and it hurts like hell. I've been through so much here in Philly. It wasn't what I'd wanted or chosen, and pushed me well beyond my comfort zone, but now that it's all being swept away, I can't help but mourn. 

I lived almost a year of my life here, with my kind landlady who referred to herself as more of a roommate. I saw my aunt all the time, who I hadn't prior seen in years. I met people at these different gyms and at vegan food swaps. I earned honest money pet sitting, house sitting, and even some chicken sitting. I got to know lots of people and their pets. I wandered all over Germantown and Mt Airy, with the occasional trip to center city. I'm going to miss H-Mart. I'm going to miss all of it, all gone in a moment. Again and a-fucking-gain.

I have an apartment in Burlington now. I'm leaving Philly tomorrow. I get to try to reconnect with my old life. I don't know how that will go. I don't know how much ground I've lost or gained, physically and mentally. I feel very damaged. In addition to grieving for everyone and everything I'm saying goodbye to, I'm full of fears about what traumas my new life will bring, as once more, I'm thrust into the unknown.

People ask me if I'm excited to be going back to Vermont. I've been here a long time. I don't know what I'm going back to anymore. Maybe things will go well. It's theoretically possible. I can't stop crying, but I'm no longer suicidal, and that's no small thing.

transitions

Among so many fears, I was concerned that even under much better circumstances, this plan of moving and then moving again was going to be rough. As much as I've wanted to get back to Vermont, I've now lived almost a year of my life here.  I've had all these strange and new experiences and interactions. There is a lot here I might have appreciated more, had it not been under such duress. There is a lot I will miss. 

This sounds like simple sentimentalism. Bittersweet, but hardly the end of the world. More like the end of one world and the beginning of yet another. I struggle with transitions, and moving like this is a massive one. My whole life is about the be completely different again. I have all kinds of work to do, getting it back together. I will be in a very different neighborhood than I was before, let alone where I am now. I will have to learn to adapt to everything, including adapting to the reality of things I'll fail to adapt to. I don't know how it's all going to go, but I'm hopeful.

My room here is already rented out to another needy soul as of the day after tomorrow. The day after that, I'll be meeting my new landlord in Burlington.