I hate the autism diagnosis and that in itself may be symptomatic of autism. It is too vague, too open ended, what good is it? They say it's common for people on the spectrum to have no interest in fiction, but also common not to have that issue at all. Every symptom is like this. Common to have it, common not to have it, and common to have completely opposite symptoms. What kind of diagnosis is this? Is it common for people with autism to hate the ambiguity of it?
I hate the wide gamut of severity, too. Low vs high functioning doesn't even begin to cover it. I'm low functioning in that I don't work or have friends to do much of anything, but high functioning in my ability act like an otherwise neurotypical person when I'm in public. Nobody with any familiarity with severe autism would confuse me for one of them, and yet it doesn't make much sense to call me high functioning.
My therapist pointed me towards a website with a range of diagnostic tests. While there are some areas where I don't seem to be at all autistic, overall, I score in the low to moderate range for autism. There's even a test specifically for masking, for those who might score deceptively low, due to having the self-consciousness to camouflage, and that's where I score very high. Well above the average for both neurotypicals and autistics. I'm trying like hell to be normal, why isn't it working?
What do I do with all this? I don't know. I don't want to come to terms with it. I don't want to lean into making excuses. I desperately want to feel less alone, less like a failure. I doubt the utility of saying it's not my fault, it's just autism. That just makes me feel hopeless. Whatever we call it, I already know that I'm like this and I'm so tired of it.
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My entries have been longer lately. I've always tried to keep them to a reasonable length aside from that time I was shrooming, but I've been worrying about that less lately. Why do I write? Because I feel like it, and hardly ever feel like doing much of anything. I need to find someone with motivation to spare, but short of that, I write because it's the only thing I feel like doing, so why not. Given that I'm not really trying to do anything else, such as write something interesting other people might want to read, I might as well relax some of these rules I've been going by.
I could pretty much just write all day. I don't know why. I don't do it, because it would serve no purpose. I don't write with enough intention to point my writing in any particular direction. I only know how to ramble about whatever I feel like going on about. I did ok with community college level papers. I have some hope that I could learn to do more than this, but so far, I just keep doing this.
This is something an autistic person would do, isn't it. Which I hold back, because I don't approve. Better to camouflage it.
What IS autism, I tried asking Google, but could only find vague studies and theories. That's a broader problem with almost everything in the DSM, but it's especially true of autism. They don't know. Even when they do study it, I don't know if they're studying severe autism or high functioning autism and that's especially important given my concerns that they might be two separate unrelated disorders. It's all so poorly defined.
I always thought lacking "theory of mind" was one of the most fundamental elements of autism. They're in their own world, in large part because they don't think about anyone else's world and thus, the world in between connecting us. I think about this a lot, in every conceivable way. I can't interact with people, without concerning myself with what they're experiencing, thinking, and feeling.
Then it occurs to me to question conventional interpretation. Is it possible they're actually getting the phenomena completely wrong? People often read too much into superficial aspects, failing to even consider the ways in which that can be misleading. Could this be such a case?
What I don't do is presume to understand other people. I never know what anyone else is thinking, feeling, or experiencing. I do my best to ascertain that, precisely because it is impossible to know. It is neurotypical to assume others are like us, until given evidence to the contrary. I've read that people are predisposed to assume that we feel, think, and experience things pretty much the same way. Our "theory of mind" may be based on these presumptions of others, whereas I diverge not in lacking empathy, but in thinking so much about it.
Lacking this presumed theory of mind, a person might diverge in a number of different directions, with whole chain reactions of developmental consequences. It may be atypical that I leaned so far into trying to compensate, but lacking an instinct to presume shared normalcy may be the common denominator.
My father's favorite thing in the world seemed to be reading fiction. He also liked movies and television shows. He didn't like much of anything else. He didn't have friends or much interest in other people. He didn't care about his own appearance, and barely noticed anyone else's. He was always complaining about how everything made him uncomfortable. He had a hell of a time finding clothes he could stand to wear. All pretty textbook autism.
I read that some autistics don't like fiction because they don't relate to the social dynamics involved. If that has any basis in reality beyond the guesswork of neurotypicals, it isn't the issue at all in my case. I don't like that it isn't real and that it's passive. If I'm just passively absorbing information, I want to be learning about things that actually exist.
If I'm instead trying to to enjoy myself, I want it to be more interactive. I get so irritated when video games have too much story, but I don't even play games anymore, lately. I just want to train. On the days when I can't, I just sit here obsessing about it, doing nothing. I'm highly sensitive but trying to get used to being punched in the face. I've made a concerted effort to take more interest in people and appreciate the massive benefits over doing everything alone, but it certainly isn't what comes naturally to me.
I desperately depend on my routines to function at all. I handle uncertainty very badly. I crave novelty while avoiding it like the plague. I struggle with loud noises and bright lights, but I also care more about how my clothes look than how they feel. I care what other people are thinking, but I'm never really sure.
My whole life I've been hoping they're not thinking I'm autistic.